Tuesday, January 17, 2017

June 2016 | The Best Day Ever


On June 20th & 21st we traveled to Cincinnati for an MRI of Neve’s eyes and brain.  She is under anesthesia for the MRIs, but they are fairly quick compared to other treatments.  Her recovery is very fast.  We often reflect back that a year ago we’d be freaking out about any of our kids having any sort of anesthesia let alone an MRI.  Now it just feels like the least painless procedure she’s had all year.

We received a good report.  Her right eye shows no signs of the old tumor growing, no new tumors, her left eye and her brain remain clear.  For two years they want MRIs every six months to ensure everything remains stable.  This milestone coupled with her turning six in 2017 will significantly reduce the chances for recurrence.

During this visit she also had an Exam Under Anesthesia (EUA) to look at both of her eyes.  The scleral buckling procedure continues to show the retina healing.  However, there remains a thick, gunky fluid in her eye so they can’t get a clear look at the dormant tumor or to see if there are any new seeds.  Nonetheless, they give us the go-ahead to push the next appointment out to 8-10 weeks.  This is a huge relief as it allows us to enjoy summer!

There’s no slowing us down as June 25th brings the Make-A-Wish Walk for Wishes.  So many of you provided support to our team’s effort and we were recognized as being the number one fundraising team there. Thank you!!   Neve was SO giddy to be a wish kid and have so many friends and family there with her and for her.  We even made the local news:  http://cbs4indy.com/2016/06/25/hoosiers-wake-up-to-walk-for-wishes-to-help-kids-with-life-threatening-illnesses/


Neve declared it THE BEST DAY EVER!!

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