On June 20th & 21st
we traveled to Cincinnati for an MRI of Neve’s eyes and brain. She is under anesthesia for the MRIs, but
they are fairly quick compared to other treatments. Her recovery is very fast. We often reflect back that a year ago we’d be
freaking out about any of our kids having any sort of anesthesia let alone an
MRI. Now it just feels like the least
painless procedure she’s had all year.
We received a good report. Her right eye shows no signs of the old tumor
growing, no new tumors, her left eye and her brain remain clear. For two years they want MRIs every six months
to ensure everything remains stable.
This milestone coupled with her turning six in 2017 will significantly
reduce the chances for recurrence.
During this visit she also had an
Exam Under Anesthesia (EUA) to look at both of her eyes. The scleral buckling procedure continues to
show the retina healing. However, there remains
a thick, gunky fluid in her eye so they can’t get a clear look at the dormant
tumor or to see if there are any new seeds.
Nonetheless, they give us the go-ahead to push the next appointment out
to 8-10 weeks. This is a huge relief as
it allows us to enjoy summer!
There’s no slowing us down as June
25th brings the Make-A-Wish Walk for Wishes. So many of you provided support to our team’s
effort and we were recognized as being the number one fundraising team there. Thank
you!! Neve was SO giddy to be a wish kid and have so
many friends and family there with her and for her. We even made the local news: http://cbs4indy.com/2016/06/25/hoosiers-wake-up-to-walk-for-wishes-to-help-kids-with-life-threatening-illnesses/
Neve declared it THE BEST DAY
EVER!!
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